Ocular Melanoma

I hope so professor! I don't have the knowledge you have but I am feeling a lot of hope lately with articles I am reading I keep praying the researchers are going to find a cure for glioblastoma and metastatic Ocular melanoma to liver! Hope! (@Abbeyandsmokey)

Ocular Melanoma @ACureInSight1 July 22 Seminar join us for up to date discussion on therapeutics. @HRInstitute_AZ @angelesclinic @SarahCannonDocs @MeredithMcKean @LADalvinMD @MayoClinicEye @Immunocore @foghorntx @CastleBio https://t.co/JYHX4p2GDd (@OmidHamidMD)

📺 Videos of the 2023 Australasian Ocular Melanoma Alliance (AOMA) Virtual Summit held on Saturday 24 June are now available online. Watch all the sessions or only the videos you are interested in. https://t.co/niTSziWuKJ @AnthonyMJoshua @IrisMelanoma @MRFCureOM @OcuMelUK (@MASC_Trials)

📺 Videos of the 2023 Australasian Ocular Melanoma Alliance (AOMA) Virtual Summit held on Saturday 24 June are now available online. https://t.co/DwozIrHHdb @OlofssonBagge @KarenvanGorp @CPH_ECU @Robbotommo @ElinSGrayPhD @HelenRizos @ShellTaylor8 @SydneySaveSight @PeterGorayski (@AOMA_MASC)

Super interesting about melanoma. Would like to know if melanoma study would include Ocular Melanoma and if high fiber would be beneficial in that patient cohort? (@Abbeyandsmokey)

Ocular melanoma patients left out again, so sad (@Abbeyandsmokey)

@ShellTaylor8 talking at AOMA Summit about agonising wait for test results before finally being diagnosed with ocular melanoma. She talks about her eye removal surgery and @AnthonyMJoshua's ongoing support. Michelle joined the @MASC_Trials Consumer Advisory Panel to help OMNIs. (@MASC_Trials)

I look forward to hearing about the progress on ocular melanoma research! (@ElinSGrayPhD)

Ocular melanoma drug trial shrinks tumour and saves man's eye. Learn about the latest OM trials at the AOMA Summit, Saturday 24 June. Register for free: https://t.co/NeGwd4a7do @gabyrogers @9NewsAUS @AnthonyMJoshua @MRFCureOM @IrisMelanoma @RareCancers https://t.co/CXWnnXcmAc (@MASC_Trials)

Ocular melanoma drug trial shrinks tumour and saves man's eye. Learn about the latest OM trials at the AOMA Summit, Saturday 24 June. Register for free: https://t.co/zmanVoBY5g @AnthonyMJoshua @OlofssonBagge @DrDamienKee @JNilsson_lab @ElinSGrayPhD https://t.co/LQUDN7BYp3 (@AOMA_MASC)

This Saturday! Register now for the AOMA Virtual Summit. It's free! https://t.co/zmanVoBqfI 4 international ocular melanoma leaders + 15 Australian experts + 2 consumers. Anyone interested in ocular melanoma should attend. @PeterGorayski @HelenRizos @CPH_ECU @OlofssonBagge (@AOMA_MASC)

This Saturday! Register now for the AOMA Virtual Summit. It's free! https://t.co/NeGwd49znQ 4 international ocular melanoma leaders + 15 Australian experts + 2 consumers. Anyone interested in ocular melanoma should attend. @AnthonyMJoshua @MRFCureOM @IrisMelanoma @EyeResearchAus (@MASC_Trials)

Yes I agree, people with cancer are more likely to be diagnosed with another. I kept up my screening. Imagine if I hadn't, survived melanoma but ended up with advanced ocular melanoma (which I found early enough via my eye tests!) For which there is no treatment! (@KarenvanGorp)

A lovely explanation of how most of us feel! Thank you for writing this. I am in Australia, a stage IV melanoma 2013 and early stage ocular melanoma and other skincancer survivor. I have been to several conferences even speaking at some and I still feel this way! (@KarenvanGorp)

Don’t miss the Australasian Ocular Melanoma Alliance Virtual Summit, Sat 24 June! Register free: https://t.co/i9xjF1MKCK ✅4 international experts ✅15 Australian experts ✅2 consumers @AnthonyMJoshua @IrisMelanoma @HelenRizos @PeterGorayski @CPH_ECU @OlofssonBagge @MRFCureOM (@AOMA_MASC)

Don’t miss the Australasian Ocular Melanoma Alliance Virtual Summit, Sat 24 June! Register free: https://t.co/NeGwd4a7do ✅ 4 international experts ✅ 15 Australian experts ✅ 2 consumers @AnthonyMJoshua @IrisMelanoma @HelenRizos @PeterGorayski @CPH_ECU @OlofssonBagge @MRFCureOM (@MASC_Trials)

Yes, they are wonderful humans! They help so many in ocular melanoma community! (@Abbeyandsmokey)

I am so sorry about your dad. Ocular melanoma is an awful cancer. My husband is stage 4 OM in liver. We are always searching for hope and are thankful for any research for all patients. Again my condolences to you for your loss (@Abbeyandsmokey)

Ocular Melanoma with liver Mets (@teresa_peltz)

The "standard of care" for choroidal melanoma, after treatment of the primary is to get an MRI of the liver every 6 months for 5 to 10 years. As far as I know, there has never been a trial showing that this improves survival or is any better than CT scans every 6 months. (@davideyoungmd)

@OlofssonBagge presenting SCANDIUM trial at the melanoma oral poster session. A treatment for those patients with ocular melanoma to the liver. @ASCO #ASCO2023 (@jzager99)

Thank you wonderful doctors for everything you do for the ocular melanoma patients! (@Abbeyandsmokey)

Some ocular melanoma patients are going to naturopathic doctors to get prescription for metformin as alternative medicine. Would use of metformin also affect immunotherapy or immune checkpoint inhibitor? (@Abbeyandsmokey)

Or if she actually has ocular melanoma 🤷🏽‍♂️🤷🏽‍♂️ Who the hell knows, maybe she was “diagnosed” by an astrologist. (@buddman4)

My old coworker's daughter had ocular melanoma. Had her eye removed. 6 months later it had spread to the liver. She drank alkaline water shipped from Hawaii. She died 6 months later. (@heytheredude)

Antivaccine activist Jennifer Margulis announced last week that she likely has ocular melanoma. She is also seeking "alternative healing," thus providing another exmaple of how tightly antivax views are intertwined with quackery. https://t.co/PzpVDEH4a9 (@gorskon)

The 2023 AOMA Summit program is now available! ✅ 4 international ocular melanoma experts ✅ 15 Australian ocular melanoma experts ✅ 2 ocular melanoma consumers with unique perspectives on clinical trials View program & register: https://t.co/NeGwd4a7do @AnthonyMJoshua (@MASC_Trials)

The 2023 AOMA Summit program is now available! ✅ 4 international ocular melanoma experts ✅ 15 Australian ocular melanoma experts ✅ 2 ocular melanoma consumers with unique perspectives on clinical trials View program & register: https://t.co/zmanVoBY5g @AnthonyMJoshua (@AOMA_MASC)

By performing a #multiomic analysis of #retinoblastoma tumors, @JWHarbourMD et al. @umiamimedicine #CancerTEC found that loss of RB1 (a #tumorsuppressor) leads to a dependency on ESRRG in pediatric eye cancer @ScienceAdvances https://t.co/Ckj6VJ4ZSa. #ChildhoodCancer (@NCIPhySci)

Choroidal melanoma, usually with GNAQ/11 mutation (@HoustonArsenal)

with the current approvals of PD1 in second line, tebentefusp in ocular melanoma, and RELATLIMAB in metastatic melanoma there is much to learn and #work to do. 35% off reistration with code #IME22OH (@OmidHamidMD)

The use of tebentafusp for uveal melanoma “stands to be practice-changing for the subset of patients with HLA-A*02:01 expression,” says our Dr. Sapna Patel: https://t.co/vx6RGsxsSR @DrSapnaPatel #EyeCancer #EndCancer (@MDAndersonNews)

Compassionate access available @angelesclinic also PRAME bispecific @AACR @immunocore many trials for Ocular Melanoma (@OmidHamidMD)

Excited this work is online nominating NRP1 as a target in #uvealmelanoma #ocularmelanoma #melsm. Small world of reviewers out there. Excited for #clinicaltrials in development! @ocularmelanoma Tx @RiyueSunnyBao @DanielOlsonMD @blabadieMD @CureMelanoma https://t.co/ornZK4xBpU (@jasonlukemd)

Excited this work online nominating NRP1 as a target in #uvealmelanoma #ocularmelanoma #melsm. Small world of reviewers out there. Confident in this research & excited for #clinicaltrial strategies. Great effort @RiyueSunnyBao @DanielOlsonMD @blabadieMD https://t.co/ornZK4xBpU (@jasonlukemd)

T cell re-direction #immunotherapy: modest ORR but more than PD1 in #coloncancer #uvealmelanoma Ready for prime time or needs more work? @alexshoushtari @TaberneroJosep @segaln @MSznol https://t.co/38zU6b8NY4 https://t.co/YlcPTocy5t https://t.co/okSsaSbFQ1 https://t.co/OYuIAgPXpu (@jitcancer)

Any updates on the Her2-CART #uveal_Melanoma trial, @OlofssonBagge please? (@BettinaRyll)

Ok Twitter people, need advice. Have a young patient with NM_002529.3(NTRK1):c.2002G>A (p.Asp668Asn) Level 2c apparently according to Qiagen- does anyone have any experience with these responding to NTRK inhibitors? (also MYC amplified/ GNA11 mutated ocular melanoma) (@AnthonyMJoshua)